Here are some ways you can help bring awareness to Idiopathic Intracranial Hypertension
If you have IIH:
Join the IH Patient Registry - this registry is compiled by the Intracranial Hypertension Research Foundation (IHRF). Your unique experience with IIH can help researchers learn more about this condition. Plus, more research opportunities open up when more people are registered.
For everyone:
Don't be afraid to talk about Idiopathic Intracranial Hypertension. I know it's a mouthful but the more you use the name, the easier it gets. When a caring neighbor asks why your daughter is having another spinal tap tell them about IIH. When a friend asks why you haven't been spending as much time out lately use the opportunity to explain that sometimes IIH causes confusion that makes it hard to socialize.
Become a Member of IHRF - help support continued research and stay up to date on latest IH news
PTC/IIH Awareness Shop
My shop on Zazzle features the IIH blue and green awareness ribbon on various merchandise. A portion of the sales is donated to IH Research Foundation
No comments:
Post a Comment